Adrenoleukodystrophy Links
Contact a Family is a national registered charity, founded in 1979, for families with disabled children.
http://www.cafamily.org.uk
My Son Joe, website dedicated to my little boy Joseph who sadly passed away
http://www.mysonjoe.org.uk
Joe Johnson built the Call Again Soon to provide a place where people affected by Leukodystrophy, and those who know and love them, can find information.
http://www.joejohnson.net
The Stop ALD Foundation funds innovative new research to jump-start the process of developing new knowledge and new therapies, which must often proceed at an excruciatingly slow pace when only funded by government sources.
http://www.stopald.org
The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting the family members, professionals and support services that serve them.
http://www.ulf.org
Treatment of Adrenoleukodystrophy
http://www.ikm.jmu.edu/Buttsjl/ISAT493/Adrenoleukodystrophy/aldtreatment.html